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Palliative and end of life care at home

Palliative and end of life care at home supports someone with a life-limiting illness to be comfortable in their own home, surrounded by the people and things they love. It supports the family too. We can match you with a CQC-registered agency near you.

  • Only CQC-registered agencies
  • Free for families
  • No obligation
  • Takes about 2 minutes

Find palliative and end of life care at home near you

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The postcode of the person who needs care.

Palliative and end of life care at home

What is palliative and end of life care at home?

Palliative care focuses on comfort and quality of life for someone whose illness cannot be cured. End of life care is part of this, for the time when someone is nearing the end of their life. Many people want to spend that time at home.

Care workers from a home care agency help with personal care, comfort and daily life, and give families time to simply be together. They work alongside others who may be involved, such as the GP, district nurses and specialist palliative care teams.

The care agency will assess your parent’s needs and agree a care plan, and this will be reviewed often as things change. Clinical decisions stay with the health professionals involved.

A carer gently holding the hand of an older woman resting in bed at home

“Gentle support at home for someone with a life-limiting illness, and their family.”

Hattie’s short version

What carers can help with

Every care plan is different. These are the things carers most often help with.

  • Help with washing, mouth care and changing clothes and bedding
  • Help your parent change position so they stay comfortable
  • Offer small meals and drinks as your parent wishes
  • Prompt or help with medicines, as agreed in the care plan
  • Sit with your parent so they are not alone
  • Support the family, and give you time to rest or be together
  • Let the nurses or the family know if they notice changes
A family sitting together in a calm living room at home

Is it right for you?

Palliative and end of life care at home can suit you if

  • Your parent has a life-limiting illness and wants to stay at home
  • They are coming home from hospital or a hospice
  • The family want to be with them but need help with day to day care
  • You need someone there overnight so you can sleep
  • You want support that fits around nurses and other professionals

Find palliative and end of life care at home near you

How it’s arranged

What usually happens once an agency gets in touch.

01

First steps

Agencies know that time matters here and will usually try to assess quickly. They will talk with your parent and family about wishes, routines and comfort, and will want to know which health professionals are involved.

02

Planning the care

The care plan sets out what carers will do and how they will work with nurses and the GP. Where possible, the agency will introduce the carers first, and will aim to keep the same small team.

03

Once care begins

Once care starts, the plan is reviewed often, as needs can change quickly. Tell the agency and the health team straight away if anything changes or if you have worries.

Costs and funding

What does palliative and end of life care at home cost?

The cost depends on how much care is needed and whether it includes nights. Our cost guide explains what affects the price, and the calculator helps you estimate it. Care may be paid for from savings, by the council after a needs and financial assessment, or by the NHS in some cases, and people with rapidly worsening conditions may be assessed for NHS Continuing Healthcare quickly. Ask the GP or nurse about this.

A family and their carer chatting over tea around the kitchen table

Questions families ask

What is the difference between palliative and end of life care?

Palliative care can start early in a life-limiting illness and focuses on comfort. End of life care is part of palliative care, for the final stage of life.

Can care be arranged quickly?

Many agencies try to respond quickly for end of life care. Tell them it is urgent when you get in touch.

Will the carers work with the nurses?

Yes. Care workers support daily care and comfort, and work alongside district nurses, the GP and any specialist teams involved.

Can the NHS pay for end of life care at home?

In some cases. Someone whose condition is getting worse quickly may be assessed for NHS Continuing Healthcare, so ask the GP or nurse.

Can a carer stay overnight?

Many agencies can provide overnight or live-in support, which can let the family rest. Ask what each agency can offer.

Find palliative and end of life care at home near you

Answer a few simple questions and we’ll match you with a CQC-registered agency that covers your area.

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Accreditations and compliance

ICO registration ZC221613

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